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Klippel Trenaunay Syndrome

May 19, 2009

Uncategorized

The world — or at least the internet — is abuzz today about the condition known as Klippel Trenaunay Syndrome or KTS.

It all started with a Marie Claire article (doesn’t it always) in which Carla Sosenko, a freelance writer and full-time copy editor at Bauer Publishing who lives in Brooklyn, revealed that she suffers from the potentially fatal disorder.

In the piece, Sosenko explains that she was born with the disorder like many who suffer from it.

“For me, it means my right leg is larger than my left and trails slightly when I walk,” Sosenko writes in Marie Claire. “My back is an uneven, fatty slab with a dense lump above the waist (which a guy in high school once called a meatball); and a gigantic port-wine stain reaches around my broad torso and down toward my right thigh.”

KTS is a congenital circulatory disorder that typically presents with abnormal benign growths on the skin, arteriovenous abscesses and varicose veins, according to the National Institute of Neurological Disorders and Stroke. There may also be fused toes or fingers, or extra digits. Although there is no cure for KTS, it is believed to occur early in the developmental stage of an embryo.

But you don’t need to take my word for it. We have a full medical description of KTS in the documents below.


Klippel Trenaunay Syndrome -